Transcript: Teen AIDS in Focus
1989
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00:00:00 They say teenagers are going to be the next generation that's going to hit hard.
00:00:20 Don't think that just because you're young, you can't get it because you can.
00:00:31 But like me, most kids think in order to be high risk, you have to be using needles or being gay.
00:00:42 And it's not true. I wasn't gay and I didn't use needles and I caught AIDS.
00:00:50 I think American teenagers today, because of the drugs and the alcohol issues, I don't think you're trusted enough.
00:00:59 I mean, I really feel deep down in my heart that if we give you the right information and you've got that,
00:01:06 I absolutely feel assured you'll make the right decisions for yourself around all these issues.
00:01:12 And all these issues lead one place, to AIDS.
00:01:25 My name is Ginger Smiley and I work for the health department. I'm a health educator.
00:01:31 We're going to be doing a four-part educational program on AIDS.
00:01:37 And this is a special program. We're going to have two gentlemen come into the classroom who are people who have AIDS.
00:01:44 And they're going to talk to you about what the disease has done to them and what it has meant for them in their lives.
00:01:51 Do you know who you contracted it from?
00:01:54 I have no idea.
00:01:55 I would love to blame somebody. I would love to take that person and go, you know, how could you do this to me?
00:02:02 I contracted the disease through sexual contact with a girl. I contracted it from not using a condom.
00:02:13 I was doing unsafe sex and I wasn't listening. So it's really nobody's fault but my own.
00:02:23 I really get mad at myself for being so eager to have sex with someone.
00:02:33 When I first heard about AIDS it was like all that I'd seen in the newspapers were gay, white, male, you know, has AIDS.
00:02:44 But we know now that everyone has it, like older people, younger people. Not only gay people have it.
00:02:50 A person with AIDS looks the same as anyone else.
00:02:53 You think so?
00:02:54 Maybe a little thinner.
00:02:55 How do you know they have AIDS? I mean, you've never seen them before so you don't know.
00:02:59 AIDS doesn't discriminate regardless of race, color, religion, sex, sexual orientation, or age.
00:03:09 AIDS can be gotten in a number of different ways, such as sex, any kind, or IV drugs.
00:03:17 Friends or strangers, if they both share needles, then they just get AIDS.
00:03:23 Do you feel if you wouldn't have become gay and you would have stayed straight that you would have had a better chance of not catching AIDS?
00:03:30 Actually, as a gay person, I'm probably safer around AIDS than you are.
00:03:34 Because we've educated ourselves as a community. We have tons of education. This is all about our education.
00:03:42 I grew up in a house full of men. I had three older brothers, and my father, and then my mother.
00:03:50 And having four older men in my house, not one of them ever showed me a condom or ever talked about a condom.
00:03:59 It was like the first time I knew about a condom was in the schoolyard, blowing balloons with them.
00:04:06 That was what I was taught.
00:04:11 My first encounter, all it took was just that one time. I used no protection.
00:04:21 I think people are too entwined with the heat of the moment. I know there are a lot of people that do take the necessary precautions,
00:04:27 but there are a lot of teenagers that are out there, and it's more important to them to get laid than to slip on a condom.
00:04:35 That's true.
00:04:36 I think if somebody was really wasted on a Saturday night, they wouldn't be worrying about getting AIDS and having safe sex.
00:04:45 It could save a hundred people's life, one condom.
00:04:50 Because if that person didn't use a condom, he would have contracted it, not knowing he contracted it for a while.
00:04:57 We gave it to somebody else, we gave it to somebody else, we gave it to somebody else, you know, so on.
00:05:03 So it's one 90-cent condom.
00:05:07 It isn't cool to have unsafe sex at all, man.
00:05:10 It's just like, do you want to go kill your friends? Do it.
00:05:15 I don't want to kill mine.
00:05:17 Did you feel devastated when you found out you had AIDS?
00:05:22 Yeah, I was devastated. I was more than devastated.
00:05:25 I was numb to the whole thing.
00:05:27 I didn't expect it to happen, and I just didn't feel anything.
00:05:32 I didn't feel scared, and I felt lonely.
00:05:36 I felt like nobody else could understand what was going on around me, and I didn't know who to share it with.
00:05:45 As far as being able to go to anyone, I felt that there was no one I could.
00:05:51 So to deal with it, I didn't think about it.
00:05:56 I've got to have somebody there to talk to, and someone to keep my mind off of my own thoughts.
00:06:05 If I'm alone, I think too much, and it gets me really depressed.
00:06:10 And you don't worry about it, you know, you don't worry about it when you don't have it,
00:06:14 but when you have it, it's the worst thing in the world.
00:06:17 It doesn't get worse than this, you know.
00:06:20 Every day is like, sometimes you just don't want to even live.
00:06:26 You just don't. It's too scary.
00:06:33 People that know that you have AIDS, do they go around treating you like a person, or an animal, or like a handicap?
00:06:40 It differs from one to one. Right now, I'm fighting for the most part.
00:06:43 People are pretty nice to me, for the most part.
00:06:46 I don't know, it's just like the thought of being around someone who has it, it scares me.
00:06:52 It's kind of hard to tell someone about it, because you don't know how they're going to react.
00:06:58 You don't know if they're going to accept you, or if they're going to be afraid and ostracize you.
00:07:08 When I found out about AIDS, I learned all I could find out about it.
00:07:11 Knowing Vicky has helped a lot. I mean, I learn more about it, more about it each time I see her.
00:07:17 But I knew that you couldn't get it from casual contact.
00:07:21 And it didn't scare me to give her a hug and tell her I was going to be here for her if she needed me.
00:07:26 The friends I have told didn't believe me at first, and then when they realized I was serious,
00:07:33 they were, you know, they had sympathy for me and all that, but they haven't come around since.
00:07:39 There was a hand over here.
00:07:41 Are you scared to catch a cold from anybody?
00:07:44 No, I don't mind. Some people run around with hankies over their face.
00:07:48 I couldn't care less. I'm so mean a germ couldn't live in me more than five minutes.
00:07:52 I wake up sometimes in the morning, and I'll notice something different,
00:07:58 like maybe I might have a bruise on my arm or leg.
00:08:03 And I'll immediately think, oh no, I'm getting ready to die.
00:08:06 It's like a bad nightmare when you look in the mirror and you see things changing,
00:08:12 and you have to realize it, and you have to face it.
00:08:16 I see, like, my eyes sinking in, and I feel my face breaking up.
00:08:21 And when I think about it, it just destroys me, you know, it comes twice as hard.
00:08:29 I heard on the news that they wanted to pass a law to make it mandatory for pregnant women to be tested for AIDS.
00:08:35 And they tested me, and it came in positive.
00:08:40 Augustine was born HIV-positive, so now we just deal with him being HIV-positive,
00:08:48 and he'll stay HIV-positive for the rest of his life.
00:08:52 Where's the button? Where's the button?
00:08:54 I'm afraid to watch my son die, and I'm afraid to die myself.
00:08:58 But besides that, I deal with everyday fears, and I just deal with them.
00:09:04 Since we both have AIDS, I try and make our time together special as much as possible.
00:09:16 Did your career end when you got AIDS?
00:09:20 It, um, how do I say it?
00:09:24 I was diagnosed with pneumocystis pneumonia, which attacked my lungs.
00:09:29 And, you know, I mean, it was like, you know, unbelievable.
00:09:34 I couldn't believe this was happening to me.
00:09:37 It took away my job. It took away my energy.
00:09:41 It took away a lot of things that I like to do. I was a teacher.
00:09:46 Before I wanted to go to college and have a career, I wanted to be a lawyer.
00:09:51 And now that I know I have AIDS, I thank God, you know,
00:09:56 eight years of school to become a lawyer is too long. I may not be here that long.
00:10:00 So I have to find a career that doesn't take so long,
00:10:04 or maybe I just won't have a career. Maybe I just won't become anything.
00:10:09 My ambitions before, uh, go to Hollywood and make it big, uh,
00:10:18 now it's like, um, I still do have that dream,
00:10:22 trying to be a bit more realistic about it.
00:10:25 Um, now it's just like I, my main ambition now is to overcome this
00:10:32 and to live a productive life.
00:10:36 I don't have nothing to look forward to. I don't.
00:10:40 This summer I'm pretty sure is going to be my last summer unless they come up with a cure.
00:10:45 Do you find yourself hanging on for a cure?
00:10:47 And if there was a cure, would you use it after you've gone this far?
00:10:51 I live every day to its max. I don't think about tomorrow.
00:10:56 I don't think about what happened in, you know, in the past.
00:10:59 I just live for today. And yes, I am expecting a miracle
00:11:04 because it's going to be a miracle when, when they find a cure for this disease.
00:11:08 I don't know. They say five years, they'll have one that works.
00:11:12 But, um, I'm not, I wouldn't hold my breath for myself, no.
00:11:19 I look at it like I got three months to a year.
00:11:23 You're so brave and down to earth. I mean, do you go home and you get scared?
00:11:28 When I'm alone, you know what it is, you know what it is about being alone?
00:11:33 I really don't like to say this, but I mean it's the truth.
00:11:37 I'm so afraid I'm going to die and there's not going to be anybody there.
00:11:41 I'm afraid nobody will care.
00:11:44 Dying is, it's a scary thing and I don't think anybody can even comprehend death.
00:11:52 You know, I mean, you can't even prepare yourself for death.
00:11:55 I don't think anybody can.
00:11:57 And so it's constantly on my mind that I may die. I may die tomorrow.
00:12:03 My biggest fear is not leaving my mark in this world.
00:12:12 When I do die, I'd like people to look back and at least be able to say,
00:12:16 well, damn, he was, he was this, he was that.
00:12:20 He was something.
00:12:23 Instead of just going out, I guess a quote unquote nobody.
00:12:29 Like, when I get really sick or something, I like to make a film like Yul Brenner did.
00:12:35 You know, he said, don't smoke. I did.
00:12:37 And then it said his day that he was born and the day he died because he died of cigarette smoking.
00:12:43 I like to do one that says, don't practice unsafe sex.
00:12:46 Use a condom. I didn't.
00:12:48 And then they'd show my birthday when I was born and the day that I died.
00:12:52 My oldest son Arlen isn't aware that his mother and his brother has AIDS.
00:13:00 He knows something's wrong, but he doesn't know it's AIDS.
00:13:03 I mean, how do you explain AIDS to a four-year-old child?
00:13:06 Sometimes I wish that I could wish Vicky's disease away.
00:13:09 I wish I could wish AIDS away from the world because it's unfair to people.
00:13:13 No one really deserves to have this because no one deserves to die like that.
00:13:17 But Vicky is just, she's a real special person and it's really, I don't think it's fair.
00:13:22 And Augustine, he's a baby. He's not going to have a chance to even have a real life.
00:13:26 I keep hoping that he'll have a future.
00:13:29 I keep hoping that he's going to live to go through high school and get married and have kids.
00:13:34 In the back of my mind, I don't think it'll go that far.
00:13:39 I don't think he'll live that long.
00:13:41 But the time that he does have, he's going to get plenty of love
00:13:47 and he's going to have a good time while he's here.
00:13:52 I realize that just because I do have it, that life doesn't have to stop.
00:13:57 I know there's some reason God has put me on this earth
00:14:01 because I don't think he would have made me go through all the things that I have in my lifetime
00:14:07 to just die like this.
00:14:12 They say after you find out you're positive, most people only last 11 months.
00:14:16 It's been two years for me and I'm still around.
00:14:20 Maybe I was chosen.
00:14:23 I guess the most important thing is that you don't need to go out of here anymore
00:14:28 and fear you getting AIDS or anybody who has AIDS contracting the disease.
00:14:35 I think you know a way of protecting yourself or just to say I'd rather not have sex.
00:14:44 AIDS is an equal opportunity disease and it doesn't care where you come from or who you are.
00:14:50 It'll get you if you don't protect yourself.
00:14:58 If I could change anything within the last three years, I would change my attitude towards sex.
00:15:06 Because one of my big mistakes was confusing sex with love.
00:15:13 I figured by sleeping with someone, I could gain love.
00:15:20 I could receive love and I could give love.
00:15:23 But it doesn't work like that.